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Living with an adult who has diabetes: Qualitative insights from the second Diabetes Attitudes, Wishes and Needs (DAWN2) study.

Identifieur interne : 000E58 ( Main/Exploration ); précédent : 000E57; suivant : 000E59

Living with an adult who has diabetes: Qualitative insights from the second Diabetes Attitudes, Wishes and Needs (DAWN2) study.

Auteurs : Heather L. Stuckey [États-Unis] ; Christine Mullan-Jensen [Irlande (pays)] ; Sanjay Kalra [Inde] ; Jean Reading [États-Unis] ; Johan Wens [Belgique] ; Michael Vallis [Canada] ; Andrzej Kokoszka [Pologne] ; Rachid Malek [Algérie] ; Katharina Kovacs Burns [Canada] ; Natalia Piana [Italie] ; S Ren E. Skovlund [Irlande (pays)] ; Mark Peyrot [États-Unis]

Source :

RBID : pubmed:27321345

Descripteurs français

English descriptors

Abstract

AIMS

The second Diabetes Attitudes, Wishes and Needs (DAWN2) study identified the experiences of family members who support adults living with diabetes.

METHODS

Participants were 2057 adult family members living with the person with diabetes from 17 countries. Qualitative data were responses to open-ended survey questions about how living with a person with diabetes has impacted family members and the ways they choose to be involved in the diabetes care for the person with whom they live. Emergent coding with input from multinational collaborators identified thematic content about psychosocial aspects.

RESULTS

Family members wanted to do what was best for the person with diabetes and help in whatever way possible. Four themes branched from that principle: (1) family members worry about day-to-day struggles of the person with diabetes, such as hypoglycemia and employment stability; (2) diabetes negatively affects the person with diabetes-family member relationship, creating an emotional strain and shift in relationship; (3) family members have some support resources to deal with the burdens and lifestyle changes of diabetes, but would like more; and (4) the person with diabetes has provided inspiration to the family member, and helped the family member make positive life changes in eating healthier.

CONCLUSIONS

These data provide insight into the ways that family members experience living with diabetes, including their challenges, motivations and intentions in supporting their person with diabetes. Family members speak eloquently and with emotion about their role in a family with diabetes.


DOI: 10.1016/j.diabres.2016.04.028
PubMed: 27321345


Affiliations:


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<term>Employment (psychology)</term>
<term>Family (psychology)</term>
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<term>Besoins et demandes de services de santé (MeSH)</term>
<term>Connaissances, attitudes et pratiques en santé (MeSH)</term>
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<term>Anxiety</term>
<term>Emotions</term>
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<term>Health Knowledge, Attitudes, Practice</term>
<term>Health Services Needs and Demand</term>
<term>Humans</term>
<term>Male</term>
<term>Middle Aged</term>
<term>Problem Solving</term>
<term>Quality of Life</term>
<term>Social Support</term>
<term>Surveys and Questionnaires</term>
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<term>Adulte</term>
<term>Adulte d'âge moyen</term>
<term>Anxiété</term>
<term>Besoins et demandes de services de santé</term>
<term>Connaissances, attitudes et pratiques en santé</term>
<term>Enquêtes et questionnaires</term>
<term>Femelle</term>
<term>Humains</term>
<term>Mâle</term>
<term>Qualité de vie</term>
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<p>
<b>AIMS</b>
</p>
<p>The second Diabetes Attitudes, Wishes and Needs (DAWN2) study identified the experiences of family members who support adults living with diabetes.</p>
</div>
<div type="abstract" xml:lang="en">
<p>
<b>METHODS</b>
</p>
<p>Participants were 2057 adult family members living with the person with diabetes from 17 countries. Qualitative data were responses to open-ended survey questions about how living with a person with diabetes has impacted family members and the ways they choose to be involved in the diabetes care for the person with whom they live. Emergent coding with input from multinational collaborators identified thematic content about psychosocial aspects.</p>
</div>
<div type="abstract" xml:lang="en">
<p>
<b>RESULTS</b>
</p>
<p>Family members wanted to do what was best for the person with diabetes and help in whatever way possible. Four themes branched from that principle: (1) family members worry about day-to-day struggles of the person with diabetes, such as hypoglycemia and employment stability; (2) diabetes negatively affects the person with diabetes-family member relationship, creating an emotional strain and shift in relationship; (3) family members have some support resources to deal with the burdens and lifestyle changes of diabetes, but would like more; and (4) the person with diabetes has provided inspiration to the family member, and helped the family member make positive life changes in eating healthier.</p>
</div>
<div type="abstract" xml:lang="en">
<p>
<b>CONCLUSIONS</b>
</p>
<p>These data provide insight into the ways that family members experience living with diabetes, including their challenges, motivations and intentions in supporting their person with diabetes. Family members speak eloquently and with emotion about their role in a family with diabetes.</p>
</div>
</front>
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<Year>2016</Year>
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<Title>Diabetes research and clinical practice</Title>
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<Abstract>
<AbstractText Label="AIMS" NlmCategory="OBJECTIVE">The second Diabetes Attitudes, Wishes and Needs (DAWN2) study identified the experiences of family members who support adults living with diabetes.</AbstractText>
<AbstractText Label="METHODS" NlmCategory="METHODS">Participants were 2057 adult family members living with the person with diabetes from 17 countries. Qualitative data were responses to open-ended survey questions about how living with a person with diabetes has impacted family members and the ways they choose to be involved in the diabetes care for the person with whom they live. Emergent coding with input from multinational collaborators identified thematic content about psychosocial aspects.</AbstractText>
<AbstractText Label="RESULTS" NlmCategory="RESULTS">Family members wanted to do what was best for the person with diabetes and help in whatever way possible. Four themes branched from that principle: (1) family members worry about day-to-day struggles of the person with diabetes, such as hypoglycemia and employment stability; (2) diabetes negatively affects the person with diabetes-family member relationship, creating an emotional strain and shift in relationship; (3) family members have some support resources to deal with the burdens and lifestyle changes of diabetes, but would like more; and (4) the person with diabetes has provided inspiration to the family member, and helped the family member make positive life changes in eating healthier.</AbstractText>
<AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">These data provide insight into the ways that family members experience living with diabetes, including their challenges, motivations and intentions in supporting their person with diabetes. Family members speak eloquently and with emotion about their role in a family with diabetes.</AbstractText>
<CopyrightInformation>Copyright © 2016 Elsevier Ireland Ltd. All rights reserved.</CopyrightInformation>
</Abstract>
<AuthorList CompleteYN="Y">
<Author ValidYN="Y">
<LastName>Stuckey</LastName>
<ForeName>Heather L</ForeName>
<Initials>HL</Initials>
<AffiliationInfo>
<Affiliation>Department of Medicine, College of Medicine, Pennsylvania State University, Hershey, PA, USA. Electronic address: hstuckey@hmc.psu.edu.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Mullan-Jensen</LastName>
<ForeName>Christine</ForeName>
<Initials>C</Initials>
<AffiliationInfo>
<Affiliation>Spark Market Research, Dublin, Ireland.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Kalra</LastName>
<ForeName>Sanjay</ForeName>
<Initials>S</Initials>
<AffiliationInfo>
<Affiliation>Department of Endocrinology, Bharti Hospital & B.R.I.D.E., Karnal, India.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Reading</LastName>
<ForeName>Jean</ForeName>
<Initials>J</Initials>
<AffiliationInfo>
<Affiliation>Department of Medicine, College of Medicine, Pennsylvania State University, Hershey, PA, USA.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Wens</LastName>
<ForeName>Johan</ForeName>
<Initials>J</Initials>
<AffiliationInfo>
<Affiliation>Department of Medicine and Health Sciences, Primary and Interdisciplinary Care Antwerp, University of Antwerp, Antwerp, Belgium.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Vallis</LastName>
<ForeName>Michael</ForeName>
<Initials>M</Initials>
<AffiliationInfo>
<Affiliation>Departments of Family Medicine and Psychiatry, Dalhousie University, Halifax, Nova Scotia, Canada.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Kokoszka</LastName>
<ForeName>Andrzej</ForeName>
<Initials>A</Initials>
<AffiliationInfo>
<Affiliation>II Department of Psychiatry, Medical University of Warsaw, Warsaw, Poland.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Malek</LastName>
<ForeName>Rachid</ForeName>
<Initials>R</Initials>
<AffiliationInfo>
<Affiliation>Department of Internal Medicine, Setif University Hospital, Algeria.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Kovacs Burns</LastName>
<ForeName>Katharina</ForeName>
<Initials>K</Initials>
<AffiliationInfo>
<Affiliation>Interdisciplinary Health Research Academy, Edmonton Clinic Health Academy, University of Alberta, Edmonton, Alberta, Canada.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Piana</LastName>
<ForeName>Natalia</ForeName>
<Initials>N</Initials>
<AffiliationInfo>
<Affiliation>Healthy Lifestyle Institute, (C.U.R.I.A.MO.: Centro Universitario di Ricerca Interdipartimentale Attività Motoria), University of Perugia, Perugia, Italy.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Skovlund</LastName>
<ForeName>Søren E</ForeName>
<Initials>SE</Initials>
<AffiliationInfo>
<Affiliation>Spark Market Research, Dublin, Ireland.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Peyrot</LastName>
<ForeName>Mark</ForeName>
<Initials>M</Initials>
<AffiliationInfo>
<Affiliation>Department of Sociology, Loyola University Maryland, Baltimore, MD, USA.</Affiliation>
</AffiliationInfo>
</Author>
</AuthorList>
<Language>eng</Language>
<PublicationTypeList>
<PublicationType UI="D016428">Journal Article</PublicationType>
</PublicationTypeList>
<ArticleDate DateType="Electronic">
<Year>2016</Year>
<Month>04</Month>
<Day>26</Day>
</ArticleDate>
</Article>
<MedlineJournalInfo>
<Country>Ireland</Country>
<MedlineTA>Diabetes Res Clin Pract</MedlineTA>
<NlmUniqueID>8508335</NlmUniqueID>
<ISSNLinking>0168-8227</ISSNLinking>
</MedlineJournalInfo>
<CitationSubset>IM</CitationSubset>
<MeshHeadingList>
<MeshHeading>
<DescriptorName UI="D000328" MajorTopicYN="N">Adult</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D001007" MajorTopicYN="N">Anxiety</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D003920" MajorTopicYN="N">Diabetes Mellitus</DescriptorName>
<QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D004644" MajorTopicYN="N">Emotions</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D004651" MajorTopicYN="N">Employment</DescriptorName>
<QualifierName UI="Q000523" MajorTopicYN="N">psychology</QualifierName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D005190" MajorTopicYN="N">Family</DescriptorName>
<QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D007722" MajorTopicYN="Y">Health Knowledge, Attitudes, Practice</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D006301" MajorTopicYN="Y">Health Services Needs and Demand</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D008875" MajorTopicYN="N">Middle Aged</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D011340" MajorTopicYN="N">Problem Solving</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D011788" MajorTopicYN="N">Quality of Life</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D012944" MajorTopicYN="N">Social Support</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D013315" MajorTopicYN="N">Stress, Psychological</DescriptorName>
<QualifierName UI="Q000209" MajorTopicYN="N">etiology</QualifierName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D011795" MajorTopicYN="N">Surveys and Questionnaires</DescriptorName>
</MeshHeading>
</MeshHeadingList>
<KeywordList Owner="NOTNLM">
<Keyword MajorTopicYN="N">Diabetes self-management</Keyword>
<Keyword MajorTopicYN="N">Education</Keyword>
<Keyword MajorTopicYN="N">Family members</Keyword>
<Keyword MajorTopicYN="N">Motivation</Keyword>
<Keyword MajorTopicYN="N">Psychosocial</Keyword>
<Keyword MajorTopicYN="N">Qualitative</Keyword>
</KeywordList>
</MedlineCitation>
<PubmedData>
<History>
<PubMedPubDate PubStatus="received">
<Year>2016</Year>
<Month>02</Month>
<Day>04</Day>
</PubMedPubDate>
<PubMedPubDate PubStatus="revised">
<Year>2016</Year>
<Month>03</Month>
<Day>10</Day>
</PubMedPubDate>
<PubMedPubDate PubStatus="accepted">
<Year>2016</Year>
<Month>04</Month>
<Day>16</Day>
</PubMedPubDate>
<PubMedPubDate PubStatus="entrez">
<Year>2016</Year>
<Month>6</Month>
<Day>21</Day>
<Hour>6</Hour>
<Minute>0</Minute>
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<PubMedPubDate PubStatus="pubmed">
<Year>2016</Year>
<Month>6</Month>
<Day>21</Day>
<Hour>6</Hour>
<Minute>0</Minute>
</PubMedPubDate>
<PubMedPubDate PubStatus="medline">
<Year>2016</Year>
<Month>12</Month>
<Day>15</Day>
<Hour>6</Hour>
<Minute>0</Minute>
</PubMedPubDate>
</History>
<PublicationStatus>ppublish</PublicationStatus>
<ArticleIdList>
<ArticleId IdType="pubmed">27321345</ArticleId>
<ArticleId IdType="pii">S0168-8227(16)30092-4</ArticleId>
<ArticleId IdType="doi">10.1016/j.diabres.2016.04.028</ArticleId>
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<li>Algérie</li>
<li>Belgique</li>
<li>Canada</li>
<li>Inde</li>
<li>Irlande (pays)</li>
<li>Italie</li>
<li>Pologne</li>
<li>États-Unis</li>
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<li>Maryland</li>
<li>Pennsylvanie</li>
<li>Province d'Anvers</li>
<li>Région flamande</li>
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<settlement>
<li>Anvers</li>
<li>University Park (Pennsylvanie)</li>
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<li>Université d'Anvers</li>
<li>Université d'État de Pennsylvanie</li>
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<name sortKey="Reading, Jean" sort="Reading, Jean" uniqKey="Reading J" first="Jean" last="Reading">Jean Reading</name>
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<name sortKey="Mullan Jensen, Christine" sort="Mullan Jensen, Christine" uniqKey="Mullan Jensen C" first="Christine" last="Mullan-Jensen">Christine Mullan-Jensen</name>
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<name sortKey="Skovlund, S Ren E" sort="Skovlund, S Ren E" uniqKey="Skovlund S" first="S Ren E" last="Skovlund">S Ren E. Skovlund</name>
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<name sortKey="Kalra, Sanjay" sort="Kalra, Sanjay" uniqKey="Kalra S" first="Sanjay" last="Kalra">Sanjay Kalra</name>
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<name sortKey="Wens, Johan" sort="Wens, Johan" uniqKey="Wens J" first="Johan" last="Wens">Johan Wens</name>
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<name sortKey="Vallis, Michael" sort="Vallis, Michael" uniqKey="Vallis M" first="Michael" last="Vallis">Michael Vallis</name>
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<name sortKey="Piana, Natalia" sort="Piana, Natalia" uniqKey="Piana N" first="Natalia" last="Piana">Natalia Piana</name>
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